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Scleroderma Clinical Trials
You may wish to contact the Johns Hopkins Scleroderma center for information on ongoing studies for this disorder.? http://scleroderma.jhmi.edu...
Is memory loss associated with scleroderma?
The brain is not affected by scleroderma and so other causes of memory loss should not be ruled out. Depression and stress which is common in scleroderma may be a cause ......
drugs in I.L.D. in sclerderma
Unfortunately, there is no clear answer. Dr. Wigley in the Johns Hopkins Scleroderma Center is part of a multicenter study looking at cyclophosphamide in scleroderma interstitial lung disease. Some earlier studies ......
CREST Syndrome and related pulmonary involvement
Dr. Wigley has an ongoing study of cytoxan for scleroderma lung involvement. You need to call Dr. Wigley at the Johns Hopkins Scleroderma Center and it may be worth a trip ......
scleroderma life expectancy
Older textbooks on the subject often painted a bleak picture, but I think there is general agreement that overall, scleroderma patients are doing much better. Kidney disease which use to be ......
Surgery for calcinosis
Dr. Robert Spence in the Plastic Surgery department at Johns Hopkins Bayview has been working with Dr. Fred Wigley in the scleroderma research center for many years. He is an expert ......
Stroke risk with Raynaud's syndrome
I have also read Dr. Wigley's articles on this. To my knowledge, the level of increased risk is unclear. I also do not know if any specific therapy that has been ......
scleroderma and muscle and joint stiffness
Musculoskeletal stiffnessa and pain in scleroderma can occur from may causes. Patients can develop an inflammatory polyarthritis, inflammatory muscle disease (myositis) of stiffenss from rapidly advancing skin thickening. Treatments are different. ......
Scleroderma
There is a Scleroderma Center at the Thomas Jefferson University Hospital, 111 South 11th Street, Philadelphia, PA 19107, (215)955-6000. Dr. Fred Wigley runs the Scleroderma Center (410)550-2400 x2 here at Johns ......
Best treatment for scleroderma
The question on whether to be seen in a specialized scleroderma center is difficult to answer and likely depends on how severe your disease is. Dr. Fred Wigley who runs the ......
scleroderma advice/what next ??
This is way too complicated for this type of forum except to say that he needs to be seen (if not already) in a center that specializes in scleroderma....
Scleroderma/Dermatomyositis Overlap
Since I last answered the question, Dr. Lisa Christopher now directs a Myositis Clinic at Hopkins. Dr. Frederick Wigley continues to direct the Scleroderma Center. Either might help with getting your ......
scleroderma
This depends on the severity of the scleroderma and the types of clinical problems that they are experiencing. I urge my patients that even if they opt for alternative therapy, they ......
Is enbrel an ok treatment for scleroderma
I, of course, am in favor of your seeing Dr. Wigley in the Scleroderma Center. There are not a lot of controlled trials of Enbrel or other TNF inhibitors in scleroderma. ......
PLEASE HELP
I think you mean scleroderma. I would visit a local camping or military surplus store. There are great mittens and hand warmers available which may help....
Blue hands
Although difficult to tell without seeing, I think you are describing Raynaud's Disease. Briefly, this is a problem in which the arteries that carry blood to the fingers spasm (become twitchy) ......
Scleroderma and Dialysis
I'm not sure anyone can give you an answer that would be in any way useful. There is a wide variation in life expectancy given how complicated patients are. Your nephrologist ......
Scleraderma & Surgery Complications of the Lungs
I am sorry for your friend, but I have little to offer. The complexity of the situation you describe goes way beyond any type of advice I can give you in ......
WHERE CAN I GET A CAPILLARY EXAM
You might request a consultation at a center that sees a lot of scleroderma. Dr. Wigley or Dr. Hummers at Hopkins are my obvious choices. But the scleroderma centers at UCLA ......
