SLE Research
 |
Recently, I received a phone call one night telling me that there had been a brea kthrough development at John Hopkins for the treatment of SLE. It had to do with a Chemo treatment that was showing great promise. I was told the news stated that after two year post treatment with this particular treatment there was no evidence of SLE in the trial patients. I have searched your website and I am unable to locate any information on this. Can you help me locate the information. My 11 year old daughter was dx'd with SLE when she was nine and is now two years into her treatment. She is being treated at Riley Childrens Hospital, Indianapolis. While the treatment has been somewhat successful, her c3 c4 levels see to be somewhat sporatic. With her SLE she has experianced renal problems. As you are aware, in children this young appearntly, the treatment process is somewhat a guessing game since very little research has been completed on SLE and children this young. The protocal changes frequently just to see what will work. Anyway, if you could provide a link to the information that I am seeking it would be helpful. Thank you in advance and have a wonderful Holiday Weekend! Best regards, |
 |
Dr. Michelle Petri in our Division has been using high dose ablative cytoxan therapy in patients with severe SLE. Cytoxan is a chemotherapy agent that is currently used at lower doses on a monthly basis to treat lupus renal disease and other life threatening lupus problems. The high dose protocol uses higher doses of cytoxan to destroy the abnormal bone marrow cells that are thought to cause lupus. Like other chemotherapy patients, patients on this protocol will transiently have very low white blood cell counts and platelets and thus are susceptible to infection and bleeding. Dr. Petri has shown success with a small number of patients. I am not aware of Dr. Petri or anyone else at Hopkins doing this in children. You might call her office at 410-955-3052 for more information. |
Last update: 12:38 AM Thursday, April 26, 2007
Tell A Friend
Author:
Alan Matsumoto, M.D.
Views: 2
Reference Links
Related Questions:
- positive ANA test and lupus
- Is this lupus?
- lupus
- Lupus and prednisone
- Anti-DNA antibodies
- Joint pain and mouth ulcers....is this lupus?
- Lupus and ANA test
- What does positive anti-DNA mean?
- Treating Lupus
- Could taking steroids while having the anti-ds, sm and rnp bloodwork drawn cause a false negative?
- Ankle swelling and inflammation after Pregnancy
- Lupus and Pregnancy Information
- Regional Back and Neck Pain related to SSA Level?
- ANA Negative Lupus
- What do you think of ELISA testing for ANA as opposed to IFA testing?
- Polychrondritis
- fibromyalgia and arthritis
- Lupus question
- Lupus and Pregnancy
- ANA test positive, but doctor says not to worry.
- Lupus Diagnosis with no symptoms?
- differentiating symptoms
- Lupus and Pregnancy
- Teenage-hormones may have started Lupus
- Positive/Negative Lupus Test Results
- Pain and/or swelling in fingers wrists ankles feet
- Can SLE be exacerbated by TNF agents
- Lupus and Pregnancy
- Pregnancy and lupus nephritis
- TREATMENT OF LUPUS WITHOUT STEROIDS?????
- What would you do if one of your patients
- elevated total compliment blood test
- Positive ANA Turned Negative
- positive ana and anti-scl-70
- Methotrexate Verses Imuran
- Anti Nuclear Antibody out of range
- lupus life expectancy
- test for arthritis
- Lupus and statins
- Not Sure If I Have Lupus
- Anti-ds dna test
- Anti-ds dna test
- RA
- Lupus and APS
- lupus/high blood pressure
- High ANA, indeterminate dsDNA, slight rash...
- Anti-dna levels over 1000
- Re: Anti-dna levels over 1000
- sedrate results
- SLE, deep vein thrombosis, coumadin
- Antibody levels and meaning
- MTX vs Plaquenil
- breast implants and lupus
- Question regarding referral
- ANA + CENTROMERE PATTERN
- lupus symptoms
- Re: anti-nuclear antibodies
- Lupus/Pregnancy
- why low dose prednisone?
