In Need of Fibromyalgia & Myositis Specialists

Question  I am a 25 year old female, married with two toddlers. I have experienced pain in my joints and muscles since I was small, however since the birth of my children the pain and the symptoms have gotten much worse. Through both of my pregnancies I was on bed rest to due to pre-mature labor as soon as 6 weeks. Premature births with both also. After having my son 3 years ago (daughter is 4), I decided to consult a doctor about the pain and difficulties that I was having. Seven months, two neurologists and MANY "possible" diagnosis later, I was told I have myositis and fibromyalgia. I was put on Bextra, Amitriptaline, Neurontin, and Zoloft. There was some relief for about 4 months and my meds were increased after the relief stopped. I am still getting no relief and my GP just blows it off. My pain is worse when resting but my limbs have gotten very weak. My weight is not an issue, I am 5'6" & 135 pounds. My swallowing has been effected and I am having problems with falling if I am standing or walking too long. I am not one to call the GP every couple of months, but recently I have had serious concerns about the progression of my muscle weakness.

I live in a VERY small community and am having trouble finding a physician who can treat my symptoms with options other than pain killers. I feel that the pain meds just mask the symptoms and I am not getting "treatment" for my worsening problems. I have been trying to my own research online but am at a dead end. Do you have any suggestions for finding a physician who can treat me properly? I am in Central Illinois but am willing to travel. Thank you for any suggestions that you may have.
 
Answer  Try the University of Illinois Medical Centers that are scattered throughout the state. Also, you may also look on the American College of Rheuamtology website (link from this site) for a Board Certified Rheumatologist in your area.

Last update: 06:31 PM Tuesday, April 10, 2007

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Author:

Alan Matsumoto, M.D.

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